New prostate cancer resource helps to better understand treatment options and outcomes

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Every week, more than 400 men are diagnosed with prostate cancer. With treatment, survival rates for prostate cancer are high, but understanding treatment options and side effects can be confusing.

Photo credit: University of South Australia

Now, a new prostate cancer resource — the Prostate Cancer Outcomes Report Card — hopes to make it easier for men and their families to better understand treatment options and outcomes.

Developed by a team of South Australian cancer researchers and experts and led by Dr Kerry Beckman of the University of South Australia, it breaks down the different types of treatment and assesses survival rates, cancer recurrence, secondary treatments and any impact on urinary, bowel and sexual function. ..

Backed by research, the report card is based on real-life data from 8513 South Australian men diagnosed with localized prostate cancer (2008-2018). It was developed in collaboration with a consumer advisory group, interviews with men with prostate cancer, a survey of the general public and feedback from physicians.

UniSA researcher, Dr Tenau Tiruye, said the new report card is clear, easy to understand and provides useful information so that prostate cancer patients can make informed decisions about their care.

There are several treatment options for men diagnosed with prostate cancer, each of which can have significant side effects on men’s physical function.

Dr. Tenau Tiruye, UniSA Researcher

Patient preferences play an important role in determining treatment choices, but often available information is complex and overwhelming.

Patients need access to reliable, comprehensive, simple and up-to-date information about the potential risks and benefits of each treatment to reduce unrealistic expectations about treatment outcomes and potential regret for their decisions..

Providing easy-to-understand, accessible information in a single consumer-oriented report will help men better understand treatment options and make shared decisions between patients and physicians..

A consumer-centered approach to all aspects of prostate cancer care is essential

The report card is funded by the Hospital Research Foundation Group and enabled by data collected as part of the South Australian Prostate Cancer Clinical Outcomes Collaborative (SA-PCCOC).

Flinders Professor Michael O’Callaghan said the research, based on valuable information from the SA Prostate Cancer Clinical Outcomes Collaborative, would help “make better treatment decisions” in the future.

“This long-term registry monitors how well people in SA fare after a prostate cancer diagnosis,” he says, adding that the research and registry received funding from The Hospital Research Foundation Group, Movember and USANZ.


Journal Reference:

Tiruye, T., etc (2023). Reporting real-world data about prostate cancer treatment outcomes to consumers: the prostate cancer report card. European Journal of Cancer Care.

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